Empowering the Lives of
Children with Cancer

Lessons Survivor to Survivor

1. You are a Survivor from the day you were diagnosed.

2. Get a second opinion, or a third.

3. Create your own support group. Get in touch with other co-survivors for moral support and advice.

4. Remember to BREATHE.

5. Do some soul searching. Find someplace that makes you happy and relaxed, and spend some time there on a regular basis.

6. It is okay to say, "no" to people. This is your turn to be self-nurturing.

7. Remove these words from your speech:

  • Maybe
  • Sure
  • I don't know
  • You decide
  • If you want to

8. It is okay to struggle, get mad, sad, desperate by pleading for more time, or just numb. Mourning your diagnosis is part of healing process.

9. Don't automatically think you're dying. Take 3 days to mourn it (the Three-Day Rule) and move on. Find the fighter in you. Maintain your strength.

10. Set up a CarePage (www.carepages.com or www.caringbridge.org), or send out frequent e-mails, to update your friends and family on how you are doing. This way the gossip stays to a minimum, the facts stay straight, and you don't get a million phone calls.

11. Educate yourself on the diagnosis, treatments, and current clinical trials.

12. Create a calendar that includes all medical appointments, prescription refills, and always keep a copy of medical insurance information.

13. Ask your oncologist questions, and be sure to come to your appointments with a list of things you wish to discuss.

14. During your treatments, visualize your cancer cells dying, and your healthy cells rejuvinating and taking over.

15. Get the sleep you need. Don't push yourself.

16. Have hope.

Lessons Survivor to CareGiver/Friend

1. Chemotherapy and radiation can suppress an immune system, making the patient more vulnerable to infections. Use a lot of hand sanitizer like Purell.

2. It's okay to be emotional. Seeing your friend/child/parent/love one go through treatment for cancer can be unimaginably difficult.

3. Don't blame yourself.

4. Be strong. Your loved one needs your support.

5. Try to help your loved one lead a "normal" life. Just because they have cancer does not mean that their cancer has to have them.

6. Offer your support by driving them to appointments, visiting them in the hospital or clinic, sending cards, e-mails, or little gifts letting them know you are thinking of them.

7. Do not buy latex balloons or live plants or flowers for a patient on chemotherapy. Many patients are allergic to latex, and flowers and plants have mold spores that can cause infection in someone with a suppressed immune system.

8. Be careful when you say things like:

  • You're so brave.
  • I will pray for you.
  • Are you going to die?
  • Bless your heart.
  • I know how you're feeling...

These gestures are often times difficult for the patient to hear. They need encouraging and helpful gestures like:

  • Keep fighting.
  • Let me take you out sometime.
  • Just letting you know that I'm here...
  • Can I do something for you? / Do you need anything?
  • Keep kicking the cancer's butt!

9. Don't tell me that your friend/parent/sibling/grandparent had cancer and died. It won't help the matter any.

10. Just because your loved one may have cancer, they are still the same person. Don't treat them differently.

11. Remember to take care of yourself, and tend to your needs. Even though you do not have cancer, it can affect you, too, both emotionally and physically.

 

 

 

 

 

 

 

 

 
http://www.fight2live.org Last Updated: 23-Feb-2008
Fight 2 Live Foundation ©2007 | 12234 Adams Street | Denver, CO | 80241-2844 | United States